Publications

1. "Decisions on multiple sclerosis immunotherapy: New treatment complexities urge patient engagement. J Neurol Sci 2011;306:192-7."
   Heesen C, Solari A, Giordano A, Kasper J, Köpke S.
2. "Autonomy preferences, risk knowledge and decision making performance in ms (AutoMS): the Control Preference Scale. Oral presentation at RIMS 2011 Conference, May 13-14 Turku, Finland."
   Solari A, Giordano A, Köpke S, Kasper J, Lugaresi A, Pugliatti M, Van Nunen A, Vahter L, Drulovic J, Clanet M, Sharrack B, Fulcher G, Heesen C, on behalf of the AutoMS-group
3. "Risk knowledge and planned behavior questionnaires – new tools to assess decision-making in MS. Presented as poster at RIMS 2011 Conference, May 13-14 Turku, Finland."
   Heesen C, Köpke S, Kasper J, Giordano A, Van Nunen A, Vahter L, Drulovic J, Clanet M, Sharrack B, Fulcher G, Solari A, on behalf of the AutoMS-group.
4. "Multi-language translation and cross-cultural adaptation of the patient-reported relapsing-remitting MS risk knowledge questionnaire on immunotherapy (RRMS-IRKQ): methodological issues (#52). Mult Scler 2012; 18: Suppl. (Abstract) S25-S28."
   Heesen C, Köpke S, Kasper J, Drulovic J, van Nunen A, Vahter L, Viala F, Fulcher G, Giordano A, Solari A on behalf of the AutoMS project.
5. "Decision-making in multiple sclerosis consultations in Italy: third observer and patient assessments. PLoS ONE 2013; 8(4): e60721. doi:10.1371/journal.pone.0060721"
   Pietrolongo E, Giordano A, Kleinefeld M, Confalonieri P, Lugaresi A, Tortorella C, Pugliatti M, Radice D, Goss C, Heesen C, Solari A, on behalf of the AutoMS project.
6. "Role preferences of people with multiple sclerosis: Image-revised, computerized self-administered version of the Control Preference Scale. PLoS One 2013; 8: e66127. doi:10.1371/journal.pone.0066127."
   Solari A, Giordano A, Kasper J, Drulovic J, van Nunen A, Vahter L, Viala F, Pietrolongo E, Pugliatti M, Antozzi C, Radice D, Köpke S, Heesen C, on behalf of the AutoMS project.
7. "Patient autonomy in multiple sclerosis - Possible goals and assessment strategies. J Neurol Sci. 2013. doi: pii: S0022-510X(13)00097-X. 10.1016/j.jns.2013.02.018. [Epub ahead of print]"
   Heesen C, Köpke S, Solari A, Geiger F, Kasper J.
8. "Patient expression of emotions and neurologist responses in first multiple sclerosis consultations. PLoS One 2015; 10: e0127734. doi: 10.1371/journal.pone.0127734"
   Del Piccolo L, Pietrolongo E, Radice D, Tortorella C, Confalonieri P, Pugliatti M, Lugaresi A, Giordano A, Heesen C, Solari A, on behalf of the AutoMS project.
9. "Information provision for people with multiple sclerosis. Cochrane Database Syst Rev 2014, Issue 4. Art. No.: CD008757. DOI: 10.1002/14651858.CD008757.pub2."
   Köpke S, Solari A, Khan F, Heesen C, Giordano A.
10. "Risk knowledge in early multiple sclerosis (RIKNO 1.0) - development of an outcome instrument for educational interventions. PLoS One 2015; 10:e0138364. doi: 10.1371/journal.pone.013836."
    Heesen C, Kasper J, Fischer K, Köpke S, Rahn A, Backhus I, Poettgen J, Vahter L, Drulovic J, Van Nunen A, Beckmann Y, Giordano A, Fulcher G, Solari A, for the AutoMS-group.
11. “Managing the transition (ManTra) - Construction of a resource for persons with secondary progressive multiple sclerosis and their health professionals using a qualitative approach and online survey. BMJ Open 2017;7:e017254. doi:10.1136/bmjopen-2017-017254”
    Giovannetti AM, Giordano A, Pietrolongo E, Confalonieri P, De Luca G, Tortorella C, Trojano M, Messmer Uccelli M, Torri Clerici V, Gitto L, Köpke S, Borreani C, Heesen C, Solari A, on behalf of the ManTra project.
12. "What should a person with relapsing-remitting multiple sclerosis know? – focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0). Mult Scler Relat Disord 2017; 18: 186–195"
    Heesen C, Poettgen J, Rahn A, Liethmann K, Kasper J, Fischer K, Backhus I, Vahter L, Drulovic J, Van Nunen A, Wilkie D, Beckmann Y, Paul F, Köpke S, Giordano A, Solari A, for the AutoMS-group.
13. “Risk Knowledge of People with relapsing-remitting Multiple Sclerosis – results of an international survey. PLoS One 2018;13(11):e0208004. doi: 10.1371/journal.pone.0208004”
    Giordano A, Liethmann K, Köpke S, Poettgen J, Rahn AC, Drulovic J, Beckmann Y, Sastre-Garriga J, Galea I, Heerings M, Jongen PJ, Vettorazzi E, Solari A, Heesen C; on behalf of the AutoMS group.
14. “Construction of a user-led resource for people transitioning to secondary progressive multiple sclerosis: Results of an international nominal group study. Front Neurol 2020; 11: 798. doi: 10.3389/fneur.2020.00798“
    Giovannetti AM, Barabasch A, Giordano A, Quintas R, Barello S, Graffigna G, Alfieri S, Schiffman I, Muche-Borowski C, Borreani C, Heesen C, Solari A, on behalf of the ManTra project
15. “Conversion to secondary progressive MS: Multistakeholder experiences and needs in Italy. PLoS One 2020;15(2): e0228587”
    Govannetti AM, Pietrolongo E, Borreani C, Giordano A, Schiffmann I, Barabasch A, Heesen C, Solari A, on behalf of the ManTra project.
16. ‘I will respect the autonomy of my patient’: a scoping review of shared decision making in multiple sclerosis. Int J MS Care 2020; 22(6): 285–293”
    Rahn AC, Solari A, Beckerman H, Nicholas R, Wilkie D, Heesen C, Giordano A, for the RIMS SIG patient autonomy.
17. “Relapse rates in the postpartum period in multiple sclerosis – a meta-analysis. J Neurol Neurosurg Psychiatry 2023;94(9):718-725”
    Schubert C, Steinberg L, Peper J, Ramien C, Hellwig K, Köpke S, Solari A, Giordano A, Gold SM, Friede T, Heesen C, Rahn AC.
18. “Motherhood choice in multiple sclerosis (MoMS) Development of patient reported outcome measures. Mult Scler Relat Disorders 2022; doi: https://doi.org/10.1016/j.msard.2022.103831”
    Steinberg L, Peper J, Köpke S, Solari A, Giordano A, Gold S, Hellwig K, Heesen C, Rahn AC.
19. “Knowledge and worries on motherhood choice in multiple sclerosis - a cross-sectional study on patient-reported outcome measures. Mult Scler Relat Disord 2023;76:104789. doi: 10.1016/j.msard.2023.104789”.
    Peper J, Köpke S, Solari A, Giordano A, Gold SM, Hellwig K, Steinberg L, Steckelberg A, Heesen C, Rahn AC.